Took a day off from blogging.....
Same story really with Carol. Off and on temps and heart rate changes. Essentially the goals right now are lowering her sedation enough to get the trach out. We are a little concerned that she isn't progressing as quickly as we'd like. Of course the debate is to whether the feet are causing this delay. Most the nurses think her skin issues is what is slowing her progress. Some think the pain medication itself could be causing it. They again pressured me to amputate her feet yesterday or sometime this weekend (they being the vascular surgeons here at Swedish). Most of the nurses and outside doctors, and all the intecivists here at Swedish except one that have scene her, are saying if it was there wife/spouse they would want them at Harborview for her wound care, etc. Anyway, it's tough to get a bed over there for what Carol needs. But, I've spoken with someone over there who has assured me that all we have to do on Monday is have the intecivist call him over at Harborview, and he will make it all happen.
I feel like we are just sitting around waiting for a new infection to happen. Here at Swedish they want to amputate, see if her fevers go away. Then debride the other areas of skin that have necrosed. The other doctors that have come taken a look from outside of Swedish, all seem to want to do it the other way around. Her feet are looking worse and worse day by though, and I think most of the family has come/ing to terms with everything. Although we haven't given up on them yet.
Safiya is doing great.... 3 straight days of no feeding tube required. Her doctor asked me this morning what day would be good for me to take her home this coming week. So life is going to change again and get a little more complicated this week. I remember when we first had Chloe and it felt like we couldn't go and do anything anymore, that she kept us so busy. People would always say enjoy that time becuase it's the easiest. I know realize this with Safiya, it's a breeze taking care of her. She sleeps almost the whole day. Chloe on the other hand......not such a sleeper:) It will be nice to get 2 of the 3 girls together at least. Ill post again tonight. As always, thank you for all the support from all over everyone has been showing. It's been a little tough of a week, but you know she is talking a bit, she getting to see Safiya, she wants out of here, her sedation is way down if not almost off, her blood pressure is normal, her heart is normal, her lungs are normal, her kidneys are normal, we think her brain function is normal. So lot to be thankful for.
scott
5 comments:
Just a question-Have you been over to Harborview to check out where she would be?
It must be so frustrating to be in "wait and see" mode.
Great news about Safiya! She got off of the feeding tube so fast, she must be a strong girl like her mom...
Scott,
Please know you are all in my prayers. Kelly and Shawn just called me...as hard as this is, there will be joy again. Also, if you need anything we'll all be happy to help. It amazes me the love of Carol and your family everyone has. I've never seen anything like it. God has a plan and it is always better then what we think, as hard as that is. Keep fighting both of you. Remember you are all loved so much.
Awesome that Safiya is doing so well. :)
Again, thanks for your blogs. It is reaching so many. You are so strong!
Love,
Marie
Whatever happens, dear brothers and sisters, may the Lord give you joy. Philippians 3:1
Scott:
After I left the hospital on Saturday I turned on the radio and this song was playing; Natalie Merchant’s “Wonder”. I turned it all the way up and sang along as loud as I could. So many of the words ring true.
"Doctors have come from distant cities
Just to see me
Stand over my bed
Disbelieving what they're seeing
They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation
O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as she came to my mother
Know this child will not suffer
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way"
I think it's a miracle that Carol is doing so well. Yes, things are not perfect, they rarely are. I take solice in the idea that God will cradle Carol in His hands, Lift her up and show her the way.
Carol will make her way back to you and Safiya and Chloe.
Rose
Scott,
Hello, my name is Angee Chavez I graduated from High School with Carol, wow that was a long time ago:) I'm glad Carol is getting better by each day that goes by, I know it's a long process but just know you will have her back healthy, I have faith. My family pray for you and your family each night. You are doing a wonderful job as a husband, dad and friend. Congrats on your new bundle of joy, she is precious. If your girls grow up to look like their mom they will have it made. Our thoughts are with you. Angee
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