So I wrote a really long post late last night, and for some reason it didn't post for some reason. Anyway, the surgeries went well, with the expected outcomes. The right ring finger and left hand about an inch above the wrist was taken as well. They also closed the leg wounds, and hope to just allow that to heal without further surgeries. All of this was done at 8 am yesterday.
It has been a very emotional weekend for Carol. Apparently on Saturday morning the nurse came in about 1 am and she was crying. When I got there at seven, she clearly mouthed to me "what is happening to me today". She knew. So hesitantly told her some of what was to come, but not about the whole left hand. Not sure she actually understood still what exactly was going to and has happened. She tried to make a motion to give me a hug. I just reassured her she would be able to hold and hug everyone again.
Today, at least when I was there, she was emotional as well. It's been a tough weekend for me, in that I seem to be causing her the most increase in emotion and heart rate. She had lots of family and her old highschool friends around. Thanks for all you coming...I know it meant the world to her. I took the chance to get things around the house finalized for Safiya coming home (laundry, groceries, etc.)
Safiya ended up coming home Saturday night instead of Friday, because her doctor decided she needed a blood transfusion. Her hematorcrit is now stellar, and I don't have to readmit her later to do it. She was borderline low, so it was a judgment call. She kept me up all night. I am not at all used to getting up at night. Chloe slept through the night at about 3 months, and before that Carol handled it all. It went pretty well though. In the morning Josh brought Chloe over for an at home intro (she has met her several times at the hospital). Went great at home until it was time to give Safiya a bottle, and I think Chloe thought I was hooking her up with an old friend. She lost it. By the end though she was helping me change a diaper on Safiya. That's the angle I think I am going to stick with...I need you to help me with this/that.
I took Safiya with me to the hospital today, and we were given a room to nap in as needed together.
So the agenda for the week is as follows. Tomorrow physical therapy starts....on the legs specifically. The vent was wheeled out on Saturday. Carol has been breathing on her own for many days now. I don't think they even used it for the last surgeries? The goal there is to put a stopper in the trach so she can talk and be heard. Also this week the skin debridements and grafting will start, they have just been waiting on the grafting material. They have decided it seems to go with a synthetic grafting material. Which I am guessing must just promote her own skin to grow. But these are all not that scary compared to the last couple weeks. Its has been a couple weeks of bad things we knew that were coming, and were very hard on the days they happened on, but, it feels good to have some finality and say at least for me...let's move on and get her better.
The harborview thing is on a total hault for now. She is not acute enough in any aspect to be moved for skin related conditions. I am still pushing for the prosthesis/orthopeodist there though. He's supposed to be the best...Swedish's ortho dept is good also though. I don't know enough about it to justify one over the other, except for the physicians reputations.
I will keep more up to date this week....been busy!!