Well another busy day for all of us. Carol explained her day to me as good and bad. She feels she is recovering, but there was an incident of giving her too much morphine this morning which stopped her breathing she wasn't too happy about.
There was a question at least with Heath and I if she knew about her left hand since I hadn't told her. We talked about it tonight, and she thought she had lost both her hands. So learning she still had one was an optimisitc thing for her.
Her fevers keep coming and going. She keeps having bowel issues, which for the people that know her well, know that is nothing new. She has ulcerative colitis for those that don't know. She requires daily medicine for that....which she hasn't had since she got here. I swear I have told them about this and who her gi doc is up here 4 or 5 times...anyway they called him and he they did a sigmoidoscopy. It looked great, and they just started her on her normal gi med's. So..not where the fevers are coming from.
Again they want to try moving her central iv line, as those are foreign objects and can cause infection. The idea was to a PIC line...which is a catheter in her axilla that goes to her heart. The ultrasound showed her veins to be very small. Her platelets are very high, even though she get's heparin daily. So there is some very real worry of venous thrombosis in doing a PIC. So another judgment call will have to be made by us I think by tomorrow. Leave it, move it to her other sublcavian with having the same infection risk, or do the PIC and risk another thrombotic/clotic event. The doc's want to think about it over night. That's when you know it's not a decision to be taken lightly, and when they ask me to sign a consent to do so. All and all not the hugest deal but....anyway.
I brought up again the possiblity of brain malfuction in the temperature regulation areas or maybe pitutary issues. So why not do the MRI. They said it's possible, but low on the totem pole, becuase what would you do if there was....just wait it out.
All in all she is good spirits. Thanks for all the visitors during the day and night. She really is enjoying seeing friendly faces.
We met with our future nanny/helper tonight. She is great..and importantly Carol has gotten to be in on the decision about that, and state what is important to her for the girls and their care. We feel really good about our choice. Thanks too all the people who have offered help in this regard...you have no idea how appreciative we are. Thanks to Carol's and my family through all this, without you and all your help this would be unimaginable.