Monday, February 9, 2009

2/9/2009






Well what has been happening lately. As far as Carol....she has been remaining very busy during the week with rehab. She put on her makeup by herself for the first time last week, and even though she is blind, it looked much better than I can do. How do you get mascera (sp?) so close to the eye with out touching and smearing that crap, impossible to get perfect the first time for me...anyway. We've been trying to venture out doing things like going out to eat and stuff like that. On the weekends she get's pretty tired and has been slepping almost all day on Saturday for the past few weeks. When she wakes up from sleeping her eyes have been doing some wierd things, I think I have talked about it a little already. Her pupils have been contricting momentarily when she opens her eyes, and she says she has been seeing wierd things. Yesterday was a bit of a crazy day for us. When she opened her eyes in the afternoon, her pupils were staying constricted for quite awhile. When this happens she says she get's an instant headache, makes it so she can't move really. Just overall wierd symptoms. Anyway, she is seeing her neuroopthomologis tomorrow for the first time in months, maybe he can shed some light.

Carol is scheduled for surgery on her legs, and arm mid-march. She will be in casts for 4-6 weeks after that. I think I have posted what all that is about already. We plan to focus on more of her blindness rehab for that time. Setting up the house a little better for her. Things like having part of the fridge just for her, so everything there remains the same. That theme of things staying the same if very important for her. She gets very frustrated when I move something and don't put back in the same spot. Also, we plan to work on the ocmputer stuff more. She has had two trainings on in so far. It will be slow going with it. Carol says she feels like a baby trying to learn how to use a computer. It's completely different language and is going to take some time.

Yesterday morning, before the crazy part of our day happened we had Willow's Photography (http://www.willowsphotography.com/blog/)come over and do family photos since we havne't been able to do any formal ones. I will try and attach a couple here. Safiya is doing great. She said dad the first time back in January but it was hard to tell if she knew what she was really saying. Over the weekend it has become apparent she really knows I am dada, that is the only thing she can say. Chloe is pretty much great all the time still, but a hand full now. She wants to do everythings herself, and whatever is the opposite of I want her to do. Her most famous lines right now are "I do it", and "no, I don't like it". She also seems to be having some seperation anxiety issues again. I thought we were over that awhile ago..maybe not:)

39 comments:

Linda Goossen said...

Thank you for the Update! The pictures are beautiful.

May the Lord bless you guys!

Pauline said...

Pictures are beautiful. Good luck with surgeries and rehab. As always thanks for updates Scott. Hope computer working soon can't wait to chat with Carol.
Tell her I luv her and miss her tons and always thinking of her.
Pauline

squirrelgirl said...

Absolutely gorgeous pics. Thanks for sharing.

Benny Clark and KariAnne Deines said...

Oh wow, these picture are gorgeous! She did an amazing job. The girls are beautiful and Carol, seriously you look absoultley fabulous!

Thanks for the update, I've been thinking about you guys and hoping all was well.

Shane and Michelle said...

I absolutely love these pictures! Everyone looks so cute and like one happy family. I hope Carol's pupils start feeling better. The whole idea of Carol learning the computer is exciting!

Janelle said...

Simply beautiful! You all look so great together, meant to be, remarkable, amazing! Really, I mean it, Carol, you look fantastic. So happy!

seemommysew said...

Beautiful pictures! Thanks for the update.

Ally Van Leuvan said...

Awesome pictures, you guys!! Love them!! Thanks for the update, Scott. Much appreciation.

Talk to you soon.

Love,

Ally & Pete

Candie said...

Those are some great pictures!
Carol keep up the awesome work!
Love and Prayers always!

hatch said...

Those pictures are gorgeous!!! You are a beautiful family. I love Chloe's hair like that, and Safiya is so cute and getting so big. Carol you look amazing. I love the picture of the two of you together. Thanks for the update. You all continue to be in my thoughts and prayers.
Kim Hatch

dbaxter said...

So grateful for the update. The pictures are gorgeous! I hope rehab is going smoothly and she will be home soon.
Blessings Always~
Denice Baxter

Fede y mamá Jesi said...

Loooooooooved the pics!!!! you all look awesome!!!!

marie bailey said...

WOW!!! What an incredible family! You are all beautiful. All the pictures are stunning. Thanks for sharing. Thanks as always for the updates. Always, always praying and thinking about all of you!

With Much love and prayers,
Marie

Scott & Carol Decker said...

Thanks everyone....the pictures are pretty cool. Nicely done Willow!!!

Cindy said...

It is so exciting seeing your progress. I am a friend of the Bailey's and I look every day for an update. You all are doing so well and the pictures are beautiful

Just call me Mommy said...

Your pics are beautiful! But of course, a beautiful family takes beautiful pictures. Our family thinks of you all alot, thank you for updates.

Stephanie said...

Amazing pictures of your beautiful family. Love to all, Stephanie and Family

Judds R'Us said...

What a house full of beautiful girls you have!!!

Reenie said...

Great pictures. You all look great. Thnx for the update.

megan said...

I LOVE the pictures! We were thinking about you guys on Sunday,so we called, but now understand you had a crazy day. I hope everything is ok. I'm sure we'll talk soon. Love ya!

ps--Umm, Audra only squeals. No dada, no mama--just high pitched squeals.

Willow said...

i had a BLAST with you guys, you are a ton of fun!! i just want to squeeze squeeze squeeze chloe, and safiya, they are so stinkin cute!

Heather said...

LOVE the photos!

Erica said...

Thank you for sharing! The pictures are AWESOME!

Crayl said...

The photographs are beautiful., stunning work. And look, a photo of you! It's nice to see the captured joy.
Still praying for your journey.

Mikki said...

Your family pictures are beautiful!! I don't comment here much, but I am keeping up with your progress, and my prayers are always with you.

Brittany J. said...

Your love for your wife and sweet daughters is truly touching!! God bless you, I pray you will have angels to carry you through your trials. Although we are strangers, our family is praying for you.

Ro's Lumpy Breast said...

I love the family pictures. The turned out amazing. How fun to take family pictures in bed. I love the close up and far away. Thanks so much for taking the time to update us about how your family is doing.

atingram said...

I have never posted, but have been praying for you all for months. Carol, you are so naturally beautiful. Your face is so pretty. You are very photogenic. The pictures are really wonderful and your girls are so darling. Your tesimony and love for each other in the midst of what God has taken you through is so glorifying to God and very inspiring. I think you are both overcomers and the world needs to see examples of strength of will like you both have. I amazed by your tenacity and resolve! Scott, my husband is a physician and I went through an illness a year and a half ago and it was very difficult for him, being in the medical field like you, to not be able to make me well again. I have gotten better though and I do believe "there are treasures hidden in darkness" like God tells us in Isaiah. I hope you recover quickly after your surgeries and I will be praying for comfort and strength. I am inspired by your testimonies and as you share your lives so openly.
Thoughts and prayer with your family!

Bryn and Blaine said...

I loved the famil pictures. Your girls have amazing eyes. Just wanted Carol to know I was thinking of her and thanks for the post. I know it takes time of which you do not have a lot of I am sure.

Eva_D said...

You all look SO beautiful. I'm so proud of Carol and I can only admire that she's always smiling. May God be with you.

Kellie said...

These pictures are amazing! Carol and Scott you both look absolutely fabulous!!! And the girls are both so adorable! Thank you for continuing to keep us updated. We miss you!

Lori said...

WOw awesome pictures. She did a great job. I love her unique style. Carol you look beautiful!

Julieann said...

Oh---I made a comment a few days ago on a long ago post asking for an update--it appears I had a broken link--I was so happy when I refreshed the link and saw all these posts---what absolutely beautiful pictures and I so love the updtes.

Julieann

Jen said...

Those pictures are GREAT!!! You are all so photogenic.

I haven't been by in a while and just wanted to comment cheering you on. You probably hear this all the time, but you guys are such an inspiration. Keep fighting the good fight!

Julie said...

Thank you for sharing your story and keeping us updated.
We continue to keep a prayer in our heart for you.
Good luck always to your family.

M2 (Melissa) said...

The pictures are beautiful! I love the colors and contrast! Keep going - you are all inspiring!

Valerie said...

Just this morning I was sniveling over being broke and unemployed, and anguishing over how I will pay my cell phone bill tomorrow.

After visiting KOMO's Web site, I now feel like a supreme idiot.

If it's any consolation, I'm now motivated to make everything I can of my situation.

Thanks, Carol.

Thanks, Scott.

Unbelievable. You probably don't even know what motivation you bring.

*ALL* my best.

Danica said...

I just read your story on KOMO's website--your story is very inspirational, and is a reminder of hope and determination. As a mother of a special needs child, it is so encouraging to see the hope your family has--even though life isn't always pretty. I will be praying for your family that God will give you the strength for each new day. God bless you all, and thank you for sharing your story.

Christine said...

Carol,
Your story is amazing and you are amazing. My name is Christine. I have been in a wheelchair for four years now and have an eye disease. If you have time I have a web page on youtube under Christinedavi. You can listen to my video journal for living independently. I find you interesting and took special note of your challenges with your computer. At some point you may be interested in a voice recognition program. I am currently learning too. If you are interested in chatting sometime you can have your husband email me at Christinedavi@aol.com. Keep up the fight. You are doing awesome. Christine